telling our story

We have been fortunate to be provided the opportunity to share our daughter's story. Although this journey is difficult to share at times, we know it is an important one. Our daughters have an important message to share and we are lucky to be their voice. 


children's hospital of wisconsin

Children's Hospital of Wisconsin filmed our journey in order to show what it is like moving through the heart transplant process. We are honored that they asked us to be apart of their story and are humbled by the video that they put together.

today's tmj4

Bridget Shanahan at Today's TMJ4 heard our daughter's story and helped us start our journey of raising awareness on the importance of pediatric organ donation. Read the story and watch the video. 

A follow up story on Kendall's discharge was broadcast in July 2016.

 

FOX6 NOW

Beverly Taylor at Fox6 Now heard about the girls and wanted to not only share their miracle but also a follow up story on the donation we were able to make to Children's Hospital of Wisconsin. Check out the stories here and here
 

the waukesha freeman

Karen Pilarski, writer at The Waukesha Freeman, did a print article in a local paper following the TMJ4 story. Karen also did a follow up story on the girls in August 2016.

Sarcomeric human cardiomyopathy registry (share)

SHARE, an organization devoted to researching cardiomyopathy, featured Dan's story on the patients section of their website. An amazing organization that highlights the impact that this condition has on children and families. The work they support will help create a better future for children suffering from cardiomyopathy.

miracle marathon for children's hospital of wisconsin

UW-OSHKOSH women's soccer

As part of their conference bylaws, the UW-Oshkosh Women's Soccer Team chooses a charity to play for each year. We are honored that the "Play for a Cause" charity during their 2016 season is The Beat Goes On. Co-founder, Christine Roehling, is an alum of the university and a four year letter winner of the women's soccer program.